News and features

In a world first, researchers at UCL Great Ormond Street Institute of Child Health have grown ‘mini-eyes' to better understand the development of blindness in a rare genetic disease called Usher syndrome.

In 2018, when he was 18 months old, Jacob arrived at GOSH with a rare immune disorder called hemophagocytic lymphohistiocytosis (HLH). He had chemotherapy and a bone marrow transplant.

Despite the transplant going well, due to complications, he neede…

Rafe, 18, was diagnosed with a malignant high grade brain tumour when he was just four years old. Within five hours of his first MRI scan the family were referred to GOSH. Rafe shares his journey so far.

While she was developing inside the womb, Tulsi developed spina bifida – a defect that stopped her spinal cord from forming properly. She was left with a hole in her spine and a sack of spinal fluid exposed on her back. Mum Laxmi shares her story.

For the children whose treatment needs to continue over the festive season, the staff at GOSH do their best to make it as magical as possible. This includes Caleb, who spent his second ever Christmas in surgery, before having a heart transplant on N…